Sunset over Washington Park
I’m not who I used to be just a few short months ago, but I’m not considered to be “really” ill, either. Instead, I’m somewhere in between. Lisa and I have tried for weeks to figure out what’s wrong with me. We have visited numerous doctors’ offices, I’ve had mass quantities of blood drawn, and even went online to better understand what ails me.
Yes, there is definitely something wrong. The joint pain has been over the top. We have had no diagnosis that we can hang all my pain symptoms on other than polymyalgia rheumatica (PMR).
Naturally, I have became stressed. The psychological effects have taken their toll. I don’t have a new identity that takes into account my loss of possibilities and capabilities, and I haven’t adjusted to those differences and losses yet.
The physicians and other health care professionals we have consulted ruled out some things, but after awhile, no one knows exactly what is ailing me. The simple fact is no single test can validate whether or not I have PMR. I have all the symptoms (aches and pains in my shoulders, buttocks, and hands, limited range of motion, fatigue, weight loss, etc) so therefore I must have the disease. A disease that can last anywhere from six to thirty months. After remission it can come back later in life with a vengeance.
The doctors say corticosteroid medications are helpful in reducing symptoms and are my only option going forward. My orthopedic doctor gave me a cortisone shot in each shoulder on Monday which has alleviated most of the shoulder pain and has allowed me to sleep the last couple of nights. The cortisone has also migrated to other joints offering some relief.
The naturopathic doctor recommended adhering to a well-balanced Mediterranean diet that can provide additional benefits and can also counteract some of the side effects linked to the corticosteroid drugs. Fortunately, Lisa already does an excellent job of making sure we eat well.
Lisa and I were having dinner with friends the other night and I was asked about my PMR. Half way through my commentary they became disinterested and turned away. Maybe if I’d been diagnosed with a condition better understood and sanctioned by the medical establishment (like cancer), I’d likely receive the sympathy and support offered to those who are really ill. Neighbors and friends might actually leave casseroles or offer to mow our yard.
I’m going to have to carve out a new identity for myself that accounts for this new health issue. The adjustment isn’t going to happen overnight. Luckily, Lisa and I will be in Hawaii in a little over a week and I can’t think of a better place to make an adjustment.


